This event was so popular in North America, we are bringing it to the UK!
We are offering families a special and unique opportunity to watch ‘So What Can You Eat?’ together with us, followed by a LIVE Q&A session with Creator & Director Jack Everitt and fellow co-stars! NOT TO BE MISSED!
“So What Can You Eat? is a documentary film examining the world’s growing obsession with food and the freedoms it brings from the perspective of those who don’t have the choice.
The relationship we have with food extends far beyond its impact on our physical health or personal satisfaction. Underpinning every decision we make surrounding food lies a primal right to choice, and across all cultures around the world, food, and the ritual of eating, is directly used as a means of bringing communities together.
Presented by filmmaker Jack Everitt, So What Can You Eat? examines the stories of the rare individuals who follow one of the world’s most restrictive diets in a lifelong battle to avoid severe and irreversible brain damage. In doing so he tasks his close-friend, and fellow filmmaker, Liberty Hanson, with trialing the diet for 1 whole month. Through Liberty’s struggles we discover what it really means to have freedom of choice, and how recognising these freedoms can empower us to take complete control of our health and mental wellbeing.” – Source: “So What You Can Eat?”
Thursday 18th March 2021, 7pm – 8.30pm GMT
24 hours before session: You will receive a Zoom link and Movie link/access
19.05: Premiere of Film (55 minutes)
20.00: 5 minute break
20.05: Q&A with Creator and Cast
So What Can You Eat? FREE Movie Premiere Screening
30-45 minute LIVE Q&A
Cambrooke Gift Box sent after the event (UK residents only)
You will get the chance to take part in a LIVE Q&A with:
Award-winning filmmaker Jack Everitt began his career after graduating from the prestigious BRIT School for Performing Arts in 2006. In his early career Jack honed his skills directing music videos and short documentary series for music schools. His narrative feature debut emerged in 2015 in the form of ‘Goodnight, Gloria’, which featured Thai front-runner, Russell Geoffrey Banks. Jack then went on to work on to work on various projects, directing a number of short films and as cinematographer for the action feature ‘English Dogs in Bangkok’, starring Byron Gibson and Ron Smoorenberg. In 2021 Jack released the feature length documentary ‘So What Can You Eat?’ to shed light on the rare genetic condition condition, PKU, which picked up an International award for Unforgettable Film at the Spotlght Documentary Film Festival. Unlike narrative film projects that had motivated him previously, ‘So What Can You Eat?’ was the first auto-biographical project and was inspired by his own experiences of navigating his career while living with an incurable illness.
Liberty tries the PKU diet for one month to show the impact it has on her life as someone that does not live with PKU. Find out how she got on! Her journey is fascinating.
Lynn and David Paolella:
Lynn Paolella and David Paolella are the co-founders of Ajinomoto Cambrooke.
Lynn represents the heart and soul of Cambrooke’s mission. Originally inspired to feed her two children who have PKU, Lynn’s passion for feeding others keeps her at the forefront of food science and processing technology. A recognized leader in the PKU community, Lynn continues to focus refining existing product formulations while working with the Cambrooke team to develop new and innovative product ideas. Amongst her roles, she serves as a support group liaison that provides support and patient advocacy while building strong metabolic community ties to both the families and the clinicians that serve them throughout the US and abroad.
John Adams is a founding trustee and board chair of the emerging Global Association for PKU (GAP) and is President of the Canadian PKU and Allied Disorders non-profit which he co-founded in 2008. He has an adult son with PKU, who benefited greatly from newborn screening, early clinical intervention and lifelong therapy. That son is a university graduate and urban firefighter.
Mark has classical PKU and has been on 6 exchanges most of his life.
“I try not to let PKU get me down. At the end of the day, I have PKU, PKU doesn’t have me. But there are days / times that having PKU does get to me. I try my best to overcome this and stick to the thinking “I got this”. Like others I went to primary and high school but after that I went into the world of work… I’ve now been in food manufacturing for 21 years this August”.
David built a dedicated organization to develop, manufacture, and commercialize Cambrooke’s successful line of medical food products for patients with metabolic disorders. He now serves on the Board of Directors.
Suzanne Ford RD:
BSc, PG Dip Diet, PGCE
Society Dietitian National Society for Phenylketonuria and Metabolic Dietitian North Bristol NHS Trust
Suzanne has been a dietitian in the NHS for over 25 years, and for 3 years she has been the Dietitian Advisor to NSPKU. Suzanne teaches nutrition to undergraduates at UWE and works in the NHS providing a service to adults with various metabolic disorders in Bristol.
The NSPKU/Suzanne has published about the challenges of living with PKU, women’s reproductive experiences, prescription difficulties, contributed to a review paper about ageing in PKU and most recently a paper based on the UK PKU community’s experiences of aspartame and the sugar tax.
There is a lot more work still to do, for PKU awareness generally, and also amongst decision makers in the NHS.
There is a need for developing reliable and trusted information about PKU for the community and wider, and this is ongoing work for the NSPKU (me, alongside the team of volunteers who make up NSPKU).